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The Right to A Voice. Inaugural International Angelman Day around the world. Welcome to our website! A wide range of information related to Angelman Syndrome. The findings of this st.
Explore the SUBGROUP NAME site. What are Arachnoid Cysts? Our Aims and Activities. Welcome to the Arachnoid Cyst Information Network. This website was set up as a result of my own Arachnoid Cyst diagnosis in 2005. Frustrated by the lack of information and support available, I felt it was important to share what I had learnt with other New Zealanders who may be struggling with the same diagnosis and wondering what to do next. The website does not offer medical advice.
Association for the Wellbeing of Children in Healthcare. AWCH is a national organisation advocating for the needs of children, young people and families within the health care system in Australia. Cnr Victoria and Punt Roads.
Explore the SUBGROUP NAME site. Download a sample newsletter, March 2010. Welcome to the website of the Congenital Adrenal Hyperplasia Support Group of New Zealand, or the CAHNZ Trust. The CAHNZ Trust is a registered charity devoted to offering education, support and resources to all individuals and families with congenital adrenal hyperplasia-affected children in New Zealand.
Explore the SUBGROUP NAME site. Welcome to the Fragile X New Zealand Website. Browse this site to learn more about Fragile X Syndrome, including diagnosis and testing, treatment and educational strategies. Find out more about Fragile X New Zealand, including how to join our mailing list and the things we offer. Follow the links on our web pages to get the latest information on Fragile X and related disorders. Access our latest and past newsletters here.
The mission of GENETIC COUNSELLING is to offer advise about genetic diseases and genetic tests. To patients, clinicians and geneticists. Although many people are at risk to develop or transmit a genetic disorder few have direct access to expert genetic advise and counselling. Through our GENDIA network of genetic labs we offer the largest collection of genetic tests worldwide and expert genetic counselling.
Explore the NZ Genetic Services site. Genetic Health Service NZ provides genetic diagnostic and genetic counselling services, operating clinics throughout the country. We also provide assistance in managing genetic conditions, expert advice on genetic diseases and education on genetics. For patients referred to a clinic through a health professional, this website provides a guide to what to expect at your appointment.
GOLD, the Global Organisation for Lysosomal Diseases, is an international collaboration of scientific and medical associations, patient groups, and commercial organisations dedicated to improving the lives of all patients with a lysosomal disease. GOLD believes significant progress can be made by building consensus and speaking with a united voice on behalf of the Lysosomal Diseases Community across international boundaries. MPS 2008 Symposium presentations available.
Support services for young people. Find a genetics clinic or support service. What is genetic counselling? Further information and resources. Resources for parents and families. Talking to children about genetic conditions. Cant Find a Group? Genetics in Family Medicine. Rapid genomic testing for sick babies underway. Helping People with chronic and persistent pain.
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Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues.PARSED CONTENT
The web page had the following on the homepage, "Living with a rare disease." I viewed that the web page said " What is a rare disease? Communicating with your GP." They also said " Stories from around the world. New Horizons The New Zealand Rare Disease Day Symposium. NZORD and the Minister of Health." The meta header had NZORD as the first search term. This keyword is followed by New Zealand, rare disorders, and support which isn't as important as NZORD. The other words they uses is disabilities.SEE SUBSEQUENT WEB PAGES
OPĚT SE STANE NAŠÍ HLAVNÍ ZBRANÍ STRACH? OPĚT SE STANE NAŠÍ HLAVNÍ ZBRANÍ STRACH? Že se karibská krize zastavila na okraji propasti, vděčíme jen tomu, že, jak Chruščov, tak Kennedy, dospěli k rozumnému řešení a že navíc při aktérech stálo veliké štěstí. Což by se už napříště nemuselo opakovat.
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What are the New Zealand Open Source Awards. The Open Source Awards provides a chance to recognise and celebrate the outstanding work done with free and open source software in New Zealand. The awards in 2018 will look at the successes over the last two years. Exemplary use of free and open source by New Zealand organisations. Nominations open - 3 April 2018.
The New Zealand Open Source Society. Want to know more? We exist to share the freedom of open source software, open standards, and open information for the benefit of New Zealand. Join one or more of our Mailing Lists. How can I help? The de.